Monday, March 2, 2015

Rare Disease Day Rules

Yesterday was Rare Disease Day.  As someone suffering a rare condition, Klippel-Feil Syndrome, I consider this a day to take the time to appreciate and thank those who suffer 24-7 and bless us with their gifts.  For those of you who don't know, Klippel-Feil  Syndrome basically means you were born with some of your neck bones fused.  It's like you missing vertebrae.  Only 1 in 40,000 have even a hint of it, and of coarse, mine is severe.  Instead of 7 neck bones - I have three.  When I was in school, kids would tease me that I look like a football player because it looks like I have just shoulders and a head - and asymmetrical shoulders so that adds to the fun.  Throw in severe scoliosis and I'm a barrel of fun.  Through the pain, I think the suffering has taught me to be a better person, ignore the waste in life, be more empathetic, etc.  
Guess Who
So ingrained in my personality, I don't know what kind of person I would be without it.  To me, it's so important that there are people like me around to help others try to learn empathy and to live without beauty perfection.  I won't go into my beliefs about science, DNA, and eugenics, but I've found that instead of scientists and doctors helping people have the best life they can, I'm consistently told "We know the gene so no one will suffer in the future."  While this is nice, I worry about being the last of my kind and that people don't believe those of us with rare disorders can make meaningful contributions to the world.  We can and do!  If nothing else, to those who love us.  So with that in mind, I thought I'd share some tips for appreciating those of us with rare diseases:


Saturday, February 28, 2015

Fashion Friday - Loving Lucy





For Fashion Friday, I thought I'd put up the remaining sketches for I Love Lucy I have saved.  






Sunday, February 22, 2015

Cinema Saturday - The First Year (1932)

1932 Ad from a mystery magazine
     This ad was in a mystery cut up group of magazines I purchased a few years ago.  I'm not sure exactly what magazine they are since none of the remaining pages have the title of the magazine nor the date.  The magazines are full of torn out pages and cut out pictures.  At some point someone was trying to create scrapbooks or more than likely it was a recent person trying to make a buck by selling certain cut out images and ads.  Naturally, the probably beautiful covers as well as the table of contents are missing, so I really have no idea as to the actual magazines themselves.  Naturally, they do present some clues.  This ad provides a big clue to the year of this magazine.  The First Year was released 31 July 1932 so I've some to the conclusion that this issue is probably from 1932 and more than likely close to the release date such as June or July.  I also noticed that much of the magazines look quite similar to the features and look of Film Fun magazine or one of the similar magazines published by the same company.  Film Fun really is a fun look into the early film community.  Plus they had amazing cover art, specifically the amazing girl art of Enoch Bolles.

Saturday, February 21, 2015

Fashion Friday - Lucy's Looks


Elois Jenssen thumbnail costume sketches for Lucille Ball 
as “Lucy” in I Love Lucy. (Desilu, 1951-1957)

Monday, February 16, 2015

Valentine Views - Part 3

Valentine; 1868
Hair jewelry and hair art often creeps out people these days.  I find it beautiful and full of love.  The tradition of giving a loved one a lock of hair to be close to them when they were parted.  My grandfather used to ask me for a lock of hair as a child.  Not knowing the custom at the time, I would laugh and never give it to him.  Passing away this December, I wish I had done so.  I even questioned putting a lock with him in his casket, but didn't because I thought people would think I was odd - and not in the good way.

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